Privacy and Cookies Policy

Version: 1.0

Date: 17.08.21

About SEQUENCE Digital

SEQUENCE Digital is a research programme, funded by theNational Institute for Health Research (NIHR) under its Programme Grants forApplied Research Programme (award number NIHR200856). The programme is sponsored and hosted by Central and North West London NHS Foundation Trust (CNWL) and is delivered by:

•      University College London 

•      Glasgow Caledonian University 

•      Barts Health NHS Trust 

•      Islington Council 

•      NHS Greater Glasgow and Clyde 

•      University Hospitals Birmingham NHS Foundation Trust 

•      University of Birmingham 

•      University of Strathclyde 

•      Western Sussex Hospitals NHS Foundation Trust

The SEQUENCE Digital research team is dedicated to safeguarding and preserving your privacy when visiting this website. The purpose of this privacy and cookies policy (the “Privacy & Cookies Policy”) is to inform you about our privacy practices, including how we collect, use and disclose your personal information, in line with our sponsor, Central and North West London NHS Foundation Trust (CNWL) Privacy Policy and about the use of Cookies.

‍You may access and use this website if you agree to be legally bound by the terms set out below. If you do not agree to be legally bound by those terms, please do not access and/or use sequencedigital.co.uk.

This site is only intended for use bypeople who live in England and Scotland.

CNWL and its partners make decisionson what data is processed and how this will be done. This role is undertaken in accordance with the General Data Protection Regularly (GDPR) and the DataProtection Act 2018.

For all requests regarding the control of your data, please contact Central and North West London NHS Foundation Trust– sponsor.noclor@nhs.net.‍

This statement describes how we collect and use personal information via our website and Twitter channel. The terms of this statement may change, so please check it from time to time - you can see the date it was last changed above.

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‍Changes to terms

We may make changes to this privacy policy at any time. Changes will be posted here and are effective immediately.  You should visit this page regularly, so you know:

• the personal information that is collected on the SEQUENCE Digital website
• how the SEQUENCE Digital research team uses your personal information
• when (if ever) the SEQUENCE Digital research team shares your personal information with someone else

Who manages this website and has intellectual property rights?

This website is managed by the SEQUENCE Digital research team (data processor) on behalf of our sponsor, Central and North West London NHS Foundation Trust (CNWL) who are the data controller.

For your own personal non-commercial use, you may copy, download, adapt or print off copies of the materials, information, data and other content included on the sequencedigital.co.ukwebsite ('SEQUENCE Digital content'). You will need to obtain permission in writing from us before you make any other use of 'SEQUENCE Digital content'.

The rights in images, trademarks,trade names, logos included on sequencedigital.co.uk are owned by us, third parties and/or are copyright free. You will need to obtain permission in writing from the owner before you may use these images, trademarks, tradenames, logos in any way.

Third party content and linking to other websites

This website contains links to other NHS and non-NHS websites. This privacy policy applies to SEQUENCE Digital, acting on behalf of CNWL only.

‍Following a link to another website

When you go to another website, read the privacy policy on that website if you want to know what it does with your information. The SEQUENCE Digital research team doesn’t pass on any of your personal information to other websites.

Following a link to this site from another website

When you come to this site from another website, such as a clinic website, the SEQUENCE Digital research team may get personal information about you from the other website. You should read the privacy policy of websites you visit that link you to this site if you want to know about this.

These policies will explain how they collect and use your personal information, and whether they pass this on to websites they link you to.

‍Third-party website content

We embed external content from third-party websites such as YouTube, Vimeo and Twitter including cookies. This content is not published on our website. It is delivered using tools and services from third party sites that can be inserted into our site such as media players, RSS feeds and widgets. These websites may use cookies. Their content is subject to the privacy policy of the relevant third-party provider and not ours.

Medical information disclaimer

Sequencedigital.co.uk may signpost you to medical information for use as information or for educational purposes.We do not warrant that the information provided via the weblinks we have shared, will meet your health or medical requirements. It is up to you to contact a health professional if you are concerned about your health.

sequencedigital.co.uk does not give medical advice in relation to any individual case or patient, nor does sequencedigital.co.uk provide medical or diagnostic services.

If you are a medical or health professional, then you are encouraged to use our sponsors’ website - www.cnwl.nhs.uk for general information purposes. 

What information do we collect?

We collect the following information from people visiting the website:

• Site usage information, using cookies and page tagging techniques
• Personal data via contact forms or expression of interest forms:

Personal data is data that relates to an identifiable living person and can include your name, address, date of birth etc. We do not collect sensitive data (which can include information relatingto a data subject’s race or ethnicity, political views, religious or other beliefs, physical or mental health/conditions, sexual orientation) on the sequencedigital.co.uk website.

Completed contact forms are mailed securely to jo.gibbs@nhs.net for processing by the SEQUENCE Digital research team who are named data processors on our research study protocol (please emailus at jo.gibbs@nhs.net if you would like to see this). 

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Duration of storage

Data entered into contact forms are temporarily stored on Webflow servers as the hosting service behind sequencedigital.co.uk. The Webflow servers and the supporting content management system are accessible by Big Lemon, the company that designed and maintain the sequence.digital.co.ukwebsite.

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Your rights

The law gives you a number of rights in relation to what personal information collected on this website, is used by the SEQUENCE Digital research team on behalf of CNWL and how it is used. These rights allow you to ask us to:

• provide you with a copy of the personal information that we hold about you
• correct personal information about you which you think is inaccurate
• delete personal information about you if you think we no longer should be using it
• stop using your personal information if you think it is wrong, until it is corrected
• transfer your personal information to another provider in a commonly used format
• review automated decision-making processes that have been used to make decisions about you.

The right to withdraw consent and the right to erasure may not apply due to the nature of the research being conducted and our basis in law for processing this data. We will consider requests to remove personal identifying information from your record to ensure that the data we do retain is anonymised, while enabling us to meet our statutory and ethical requirements.

You have the right to lodge a complaint with a supervisory authority. For independent advice about data protection, privacy and data sharing issues, you can contact the Information Commissioner’s Office (ICO).

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Access to your information

Receive a copy of the data we hold about you, please contact sponsor.noclor@nhs.net.

CNWL policies on information governance and data security

The Trust’s policies on Information Governance and data security are available by requesting them at freedomofinformation.cnwl@nhs.net.

Data Protection

Under the DataProtection Act, CNWL must protect any information collected from you. CNWL uses leading technologies and encryption software to protect your data and maintain strict security standards to prevent any unauthorised access to it.

Cookies

Cookies are small text files that areheld on your computer. We use cookies to gather information to help us improve the website.

Google Analytics is an analytics product that the SEQUENCE Digital research team and the website development company, Big Lemon, uses to do things such as keep track of the number of visitors to the site and the length of their stay. When you visit our website, Google Analytics will deposit the cookies on your computer to enable us to obtain this information.

The metrics obtained through the use of first-party Google Analytics cookies do not include any information that would allow the SEQUENCE Digital research team and Big Lemon, acting on behalf of CNWL to identify visitors individually to the website; the data is anonymous. The anonymised data that is collected is stored on Google’s servers.

The Google Analytics data sharing policy offers the SEQUENCE Digital research team the option to share analytics data either ‘Anonymously with Google and others’ or with ‘Google products only’. the SEQUENCE Digital research team have chosen not to share analytics data in either of these ways.

Full details on the cookies set by Google Analytics are published on the Google website. Google also publishes a browser add-on to allow you to choose that that information about your website visit is not sent to Google Analytics.

• Read more about cookies set by Google Analytics on the Google website
• Find out more information about the Google Analytics opt-out browser add-on on the Google website

We also use Twitter Analytics, Instagram Insights, and Facebook Audience Insights in a similar way. Please refer to each of their privacy policies for more information.